Charity partner National Axial Spondyloarthritis Society (NASS) is holding an All Party Parliamentary Group (APPG) meeting on the 29th January to raise the issue of the current delay in diagnosis for AxSpA. iO Member Zoe Clark will share her own experiences of living with AxSpA at the event and we are urging members to contact your local MP ahead of the event to raise the issue of the current delay in diagnosis.
The focus of this meeting is to discuss the current average delay to diagnosis of 8.5-years and launch the official report following the Freedom of Information requests after the last APPG meeting. Zoë will be sharing the effects of her 7-year wait for the right diagnosis and demonstrating why the APPG and its work is vitally important.
Axial Spondyloarthritis (AxSpA) is a common condition affecting 1 in 200 adults in the UK and the Institute of Osteopathy has been working with NASS as part of the NASS Allies Programme. Around 60% of people with AxSpA visited an osteopath prior to their diagnosis, showing the important role osteopaths can play in helping patients receive the right diagnosis as early as possible.
We urge you to contact your local MP using this email template, inviting them to join the APPG and attend the next meeting to ensure this vital work continues. Please copy Jill at NASS into your email and forward any reply from your MP to her: firstname.lastname@example.org
Thank you for your support!